Knoxville’s “Walk to Defeat ALS” 2013

ALS Association

This year’s Walk to Defeat ALS is Saturday, September 14.

More than just a few-mile trek, the Walk to Defeat ALS® is an opportunity to bring hope to people living with ALS, to raise money for a cure, and to come together for something you care about. The Walk to Defeat ALS® is The ALS Association’s biggest annual event, which raises funds to sustain care services and support research for much of the next year. (source) Since its inception in 2001, $159 MILLION have been raised to help raise money for a cure, care services, research, education, advocacy and to influence public policy.

You have the opportunity to help raise money for team “Miles for Mom.” Link to donation page coming soon.

More info on the 9/14 walk can be found here.



Today is National ALS Advocacy Day

ALS Association

Today, May 6, marks ALS Advocacy Day. I can’t wait to share how it went in D.C., but in the meantime, here is the the results of last year’s event.


2012 Advocacy Conference Produces Results!

More than 900 ALS Advocates. Nearly 90 people with ALS. Over 20 military veterans with ALS. One goal: to urge Congress to step up the fight for a treatment and cure. That was the scene at The ALS Association’s 2012 National ALS Advocacy Day and Public Policy Conference held in Washington, DC May 13-15. Click here to read the full report.

Courtesy of

A note from ALS Association, TN Chapter, Coordinator – Shannon Silberman:

I need your help! We are attending ALS advocacy day in Washington, DC on May 6th and need as many of these letters signed as possible. Please have family members/friends sign them. There are two letters (one for Senator Corker and one for Senator Alexander) make sure you sign one of each.

Click here to download: Advocacy Walk Letter (TN)

You can print and mail the signed letters to:

Patty Lane

Post Office Box 40244

Nashville, TN 37204


Scan the signed letters and email them to:

This could put us one step closer to finding a cure for ALS!



Give a Gift of Tribute


Tennessee’s Chapter of the ALS Association’s Mission: Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

Would you like to Give a Gift of Tribute via the Tennessee Chapter of the ALS Association. Click here for more information and donate today.

Mark your Calendar for May 11

Event updates

The Inaugural Drive Out ALS Charity Golf Tournament is Saturday, May 11, with registration starting at 1 p.m. A portion of the proceeds will benefit the Tennessee chapter of the ALS Association. Click on About the Event for more details.original als logo